Wednesday, January 22, 2014

Testing results and Iep

Well two weeks ago was our annual Iep. Before this I requested an assessment in occupational therapy because of Tyler's fine motor problems in handwriting. Now the results were what I already knew is Tyler has some major sensory processing issues. Tyler used to get help in this area until age 4 or 5. We have just adapted and so has he to function in his daily life.

Anyways the therapist was concerned enough to recommend he do weekly OT sessions in a sensory room. So next week he will start after school. I am sure it will be quite an adjustment for both of us but I really hope it will be helpful for him. As for the rest of the Iep goals changed but overall he is still getting help in math and accommodations will continue in the class and for testing.

Tyler is still quite the fun, cute and interesting kid that often puzzles us all. Health wise he is doing great. A couple months ago we started to add back in small amounts of dairy to his diet and so far he seems to be handling it well. So that is about it for now.

Tuesday, November 26, 2013

Technology saving Grace

For those of you who don't already know reading doesn't come easy for Tyler. He has a hard time tracking the words, saying them and then trying to comprehend what the text was about.  Someone suggested I get a Nook for Tyler. At the time we really didn't have the money but decided to make the investment for him anyways.  I already prepped him in advance that this was not a toy and it was to be used for educational purposes only like reading books and typing reports for school. So far it has worked out in that order and he hasn't asked me to put any game apps on it, actually I don't think he knows it has the capabilities of games and I'd like to keep it that way.

In the Nook store they have a selection of books at his reading level that will read the story to you while you follow along.  Tyler hates to read but not so much anymore with the NOOK and the read to me stories.  it has helped him the last two months with book reports and he has been very interested in the books I chose for him. His current favorite series is called The Adventures of Rockhead. it is kinda like a comic book storyline but the voice over is very animated and keeps his interest in the story.

I would love if this was an option for him to have at school but unfortunately the world doesn't work that way.  This NOOK is way to expensive for me to send to school with him, even though his teacher has suggested it and told me other students bring theirs to school.  I recently put in a request for the school district to do an assistive technology assessment on Tyler. Hopefully the assessment will show that having books on something like the nook that are read out loud will help Tyler to be more successful in the classroom.  We have also found an app called List Note and it allows Tyler to speak his thoughts and the app types it for him. Now the app doesn't always recognize his voice and often makes errors but I think it can be a helpful tool for him in the classroom too. I will keep you posted but likely the testing won't be started until the new year because of the holidays and they have specific time lines they have to follow.

I just want to thank all those creative minds in the world for really bringing technology forward. It has really helped a ton of people in more ways than I am sure anyone ever imagined it would!

Friday, October 25, 2013

Catch Up

Oh boy I just realized it has been 8 months since my last posting. For the most part things are going very well health wise for Tyler. School continues to be a huge challenge for him but with modifications we have in place it helps him. He is in 5th grade this school year. That about sums up this year for him, I will try my best not to wait so long to update.

Friday, February 15, 2013

Finally help

Just wanted to share that finally after 3 school years of meetings and testing the school is able to offer help in reading and math. Now he was getting small group help but it wasn't official in his IEP until now when they found another category to qualify him help through special education. He will be decreasing his speech therapy services but I am thrilled he will now get 1:1 help in a program called RSP or resource. I look forward to improvements by the end of this school year of 4th grade.

In other news, the aleopecia has seemed to return. For those who don't know Tyler has a condition where cells in his body attack other cells which cause him to loose his hair. He was first diagnosed with a mild case 5 years ago and it wasn't too bad. Then last summer we were told his case was now moderate as very quickly he lost over 50% of his hair including his eye brows. It is not ever guaranteed the hair will grow back but he got lucky and it did grow back just recently. Well this past week it has started to fall out again. Please keep h in your thoughts or prayers as this can be very upsetting for him to be going through this again so quickly.